Stupid Cancer 101

"Nearly 70,000 Americans between 15-40 are diagnosed with cancer each year and 10,000 will not survive, numbers 7x greater than those in pediatrics. Unlike every other age group, there has been no improvement in the 5-year survival of young adults since 1976. This is not OK.

"Young adults also face unique issues that are not currently being met by the current continuum of care including fertility, isolation, insurance, dating/sexuality, financial assistance, education, employment and age-appropriate peer support such as social networking, both off and online. The last 30 years of cancer 'progress' have failed the next generation of survivors so there is no reason to think the next 30 will be any different unless change happens now.

"Remission is not a cure, survivorship is all the rage and there's more to 'cure' than just research. Are you in? It's time. It's our time.

"It's about time."


I'm Too Young for This!

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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