Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

 

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

Surviving Liz Salmi Surviving Liz Salmi

Feeling the love

July is just around the corner and that means it will be my birthday soon. I will be 35, and I say that with great pride because getting older in this uncertain world (i.e., living with an astrocytoma) means appreciating every day.

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Surviving Liz Salmi Surviving Liz Salmi

Together we're giant: forgetting about brain cancer for a day

To me, 'without struggle there is no progress' totally applies to cancer. It captures us, and holds us hostage. And if we are lucky enough to be physically freed from cancer, and escape treatment intact, there are parts of us, at times, that are emotionally enslaved by cancer. I don't want to admit it--because it sounds embarrassingly weak--but I know I am, at times, enslaved.

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Surviving Liz Salmi Surviving Liz Salmi

National Brain Tumor Society refers patient support to Imerman Angels

National Brain Tumor Society recently sent an announcement that they will be discontinuing their Patient Line and Support Network to instead focus more on research and public policy. While I am bummed about the discontinuation of the patient support network (as I was one of the support peeps) I totally understand the decision made by the NBTS board of directors.

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