Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
It will kill me if I die before him
If I am to die from brain cancer I imagine Brett crying into his pillows alone just like that.
Emails from dead friends
Sometimes I scroll past their numbers with my finger hovering just above the "call" button.
Mark Miller
There's this guy I met at the UC Davis brain tumor support group, Mark Miller. He was there to make a presentation on managing health with technology – and Mark had brain cancer too.
You're not going to die, you know
He asked the same questions. He wondered the same things. I started to cry... perhaps with relief. "You're not going to die, you know."