Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Manage constipation like a boss
Constipation is the most difficult side effect I’ve had to deal with while taking temozolomide (chemotherapy). In the past it has gotten to the point where I wouldn't want to bend over, sit up, breathe, or hug anyone. I mentioned all of this to my nurse practitioner and she passed along some valuable tips to help me attack constipation before it strikes. I wish it hadn’t taken seven months for me to learn this.